Music and Memories

Some years ago, I had the good fortune to meet and become friends with an elderly neighbor afflicted with dementia.  Though highly educated, James spoke only haltingly and, most often, could not recall names of friends and family.  Needless to say, it was difficult to watch this physically healthy man struggle to communicate, and to remember people and things important to him.

Among his many accomplishments, James was a talented pianist.  And even as his memory continued to decline, he would sit at the piano in his home and play … flawlessly … various intricate compositions.  Musical skills, it seems, are stored in a different part of the brain from verbal memory so he, like many dementia patients, retained the ability to play familiar pieces.

As we have come to understand, engaging with music provides a number of significant benefits for folks with dementia including enhanced cognitive function and improved quality of life.  In fact, familiar music stimulates important brain areas, especially when participating in singing and rhythm exercises.  Notably, this activity enriches emotional and social experiences, while fostering engagement and self-expression as well.

My lovely bride, Bonnie, and I know how fortunate we are to be able to take part in these sorts of uplifting experiences through a local group known as Musical Memory Singers.  Established in 2017, this organization invites those with mild to intermediate Alzheimer’s/dementia to join together with others enduring similar struggles, with caregivers invited to sing along for an hour of joyous music.

Musical Memory Singers musicalmemorysingers.org gather weekly to enjoy music carefully selected to be familiar to participants, with the goal being song, socialization and memory making.  Without exception, these meetings are always inspiring and filled with laughter … and, fortunately, nobody is graded on their ability to sing on key!

Bonnie and I have been together since our years at Ossining, NY, High School and, from the very beginning, “our song” has been Misty, by Johnny Mathis.  Over the years, we have seen him perform on many occasions including a show in San Antonio where, mid-song, he forgot the lyrics to the piece he was singing.  Luckily, the theater was filled with folks in their 70’s and 80’s who were already singing along … which prompted him to tell us: “You keep going … I’ll catch up.”  A magnificent example of the delicate interplay between aging, music and memory.

Hans Christian Andersen was a Danish author best known for writing children’s stories.  He spoke, this way, about the powerful  connection between music and the mind:

Where words fail, music speaks

Tears and Laughter

Though the “going to the movie theater” experience seems to be less in vogue of late, I can think back, fondly, to a number of films I enjoyed over the years.  Among the “comedies” on my list of favorites are “Where’s Poppa,” released in 1970, and the holiday classic “Christmas Vacation,” which first screened in 1989.

Anyone who has seen the latter film will recall the scene at Christmas dinner where “Aunty Bethany” (played by Mae Questal) is invited to say grace before the meal.  Confused about what she is being asked to do, she pauses and then recites The Pledge of Allegiance … which causes Cousin Eddie to stand and put his hand over his heart.

“Where’s Poppa,” stars Ruth Gordon playing the part of George Segal’s rude and  “senile” mother.   As the plot unfolds, Segal’s frustration with being his mother’s sole caregiver reaches the point where he begins considering ways to dispose of her.  All the while, she demands to know where her long-deceased husband might be, asking repeatedly … “Where’s Poppa.”

Anyone who has seen either of these productions knows that laughter abounds.

At the risk of putting a damper on the hilarity, however, it should be noted that in both of these movies the actors are portraying individuals suffering from some form of dementia.  And though film credits use the term “senile” in describing the Ruth Gordon character, we have come to understand that to be an offensive and outdated term, generally avoided in discussing this awful condition.  But since both films are considered “comedies,” it is expected that viewers will find humor in what plays out on the screen. 

It makes some of us uncomfortable, no doubt, to admit having laughed or made light of behaviors we now know to be indicative of cognitive decline.  This is not to say that humor is or should be absent from interacting with and assisting those who suffer with this awful malady.  For many caregivers, in fact, laughter can be that precious healing moment, a mere heartbeat away from crying.  The difference, of course lies in “laughing with” rather than “laughing at.”

As a matter of fact, for the caregiver and the loved one alike, humor can play an important role in helping to alleviate stress by fostering connections, reducing agitation and providing comfort in challenging situations.  Additionally, shared laughter can enhance relationships, making individuals with Alzheimer’s feel safer and more connected to their loved ones.

Like most of society, Hollywood, now takes a more thoughtful and nuanced approach to the effects of dementia on families and individuals.  in the 2014 movie “Still Alice,” for example, Julianne Moore plays the part of a linguistics professor whose gradual descent into Alzheimer’s has a profound impact upon both her and her family.  It is heart-wrenching.

As the 6th leading cause of death in the United States, Alzheimer’s can have grave consequences for both the sufferer and the caregiver.  When Owen Darnell’s wife, Esther, passed away in 1993, he wrote a poem intended to help others understand just how devastating and debilitating certain forms of dementia can be.  His poignant words allow us to see this disease from the other side:

Do not ask me to remember,
Don’t try to make me understand,
Let me rest and know you’re with me,
Kiss my cheek and hold my hand.
I’m confused beyond your concept,
I am sad and sick and lost.
All I know is that I need you
To be with me at all cost.
Do not lose your patience with me,
Do not scold or curse or cry.
I can’t help the way I’m acting,
Can’t be different though I try.
Just remember that I need you,
That the best of me is gone,
Please don’t fail to stand beside me,
Love me ’til my life is done.